Here are some links.
Register Guard Article, Precious Time for Little Stars
March 8, 2009, Article describes the work and goals of Little Stars Pediatric Program at Sacred Heart. It features 2 families who received medical care and interdisciplinary support from the program.
www.registerguard.com/csp/cms/sites/web/news/sevendays/8805667-35/story.csp
Partnership for Parents
A Support Network for Parents of Children with Serious Illnesses
www.partnershipforparents.org/
Gems of Care
A national project dedicated to improving the continuity and coordination of health care and social services for children living with life threatening illnesses and their families.
www.gemsofcare.org/
American Cancer Society
Resources for patients living with cancer.
www.cancer.org/docroot/home/index.asp